2024
Impact Report
Welcome
Welcome to the Independent Lives 2024 Impact Report. Over the past year, we have continued to support thousands of disabled people, those with long-term health and social care needs, and their carers, empowering them to live independently and with choice.
This report highlights the impact of our work in 2024, showcasing the difference we’ve made in people’s lives and the wider community. Explore the stories, achievements, and progress that make Independent Lives an essential part of the health and social care sector.
Chandos Green
Chair of trustees
I’m delighted to share this update on the work of Independent Lives over the past year. For more than two decades, our staff and volunteers have been committed to enabling disabled people, those with long-term health conditions, and carers to live independently and with choice. Despite the ongoing challenges in health and social care, our dedication to supporting people remains unwavering.
2024 marked the final year of our current strategy, during which we have expanded our reach, strengthened our services, and continued to champion the voices of those we support. We have delivered high-quality Direct Payment support across West Sussex, East Sussex, and Croydon, helped more people to manage their care with confidence, and ensured that our care services provide compassionate, person-centred support in people’s homes.
Alongside this, we have worked on vital initiatives, including community research into the impact of the cost-of-living crisis on disabled people, strategic co-production with NHS England, and training for social care professionals. Every step we take is guided by our commitment to empowerment, inclusion, and ensuring that lived experience shapes our work.
As we look ahead, we are preparing to launch our new strategy, setting a clear direction for the future of Independent Lives. Our focus remains on growing our impact, adapting to meet the challenges ahead, and ensuring that everyone can live with dignity, choice, and control.
This report highlights the difference we have made in 2024. I am incredibly proud of what we have achieved and grateful to everyone who has contributed, our dedicated staff, volunteers, supporters, and the people we work alongside. Thank you for being part of Independent Lives.
Rebecca Smicle
Chief executive officer
About us
Independent Lives is a user-led charity working to change the lives of disabled people, people with support needs and carers. We provide a range of frontline services which support people and their communities.
Our vision
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Our vision
Our vision is an accessible society where disabled people experience autonomy, choice and control in their lives.
Our mission
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Our mission
Our mission is to deliver a more equal society by
- raising awareness of disability, independent living and personalisation
- championing the voices of disabled people, carers and those accessing health and social care
- delivering high quality support and services that enable people to live independent lives
Our values
Working together we achieve real change in the lives of the people we support - so that we can all participate in our communities and have greater choice, control and freedom. Our values are:
Excellence
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Excellence
We believe in integrity, accountability and transparency. Our passion drives us to go above and beyond, delivering high-quality, person-centred services which change lives.
Inclusion
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Inclusion
We celebrate our differences and believe that embracing diversity makes us stronger. We aim to create a world based on respect and understanding where every voice is heard.
Innovation
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Innovation
We deliver creative solutions, technology, and forward-thinking strategies to continuously improve services, support and the wider environment to enable people to live independent lives.
Community
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Community
We form part of a connected, supportive environment where we build an accessible and sustainable society through our connections and support of one another.
Welcome
Welcome to the Independent Lives 2024 Impact Report. Over the past year, we have continued to support thousands of disabled people, those with long-term health and social care needs, and their carers, empowering them to live independently and with choice.
This report highlights the impact of our work in 2024, showcasing the difference we’ve made in people’s lives and the wider community. Explore the stories, achievements, and progress that make Independent Lives an essential part of the health and social care sector.
Chandos Green
Chair of trustees
I’m delighted to share this update on the work of Independent Lives over the past year. For more than two decades, our staff and volunteers have been committed to enabling disabled people, those with long-term health conditions, and carers to live independently and with choice. Despite the ongoing challenges in health and social care, our dedication to supporting people remains unwavering.
2024 marked the final year of our current strategy, during which we have expanded our reach, strengthened our services, and continued to champion the voices of those we support. We have delivered high-quality Direct Payment support across West Sussex, East Sussex, and Croydon, helped more people to manage their care with confidence, and ensured that our care services provide compassionate, person-centred support in people’s homes.
Alongside this, we have worked on vital initiatives, including community research into the impact of the cost-of-living crisis on disabled people, strategic co-production with NHS England, and training for social care professionals. Every step we take is guided by our commitment to empowerment, inclusion, and ensuring that lived experience shapes our work.
As we look ahead, we are preparing to launch our new strategy, setting a clear direction for the future of Independent Lives. Our focus remains on growing our impact, adapting to meet the challenges ahead, and ensuring that everyone can live with dignity, choice, and control.
This report highlights the difference we have made in 2024. I am incredibly proud of what we have achieved and grateful to everyone who has contributed, our dedicated staff, volunteers, supporters, and the people we work alongside. Thank you for being part of Independent Lives.
Rebecca Smicle
Chief executive
About us
Independent Lives is a user-led charity working to change the lives of disabled people, people with support needs and carers. We provide a range of frontline services which support people and their communities.
Our vision
Click or hover to find out more.
Our vision
Our vision is an accessible society where disabled people experience autonomy, choice and control in their lives.
Our mission
Click or hover to find out more.
Our mission
Our mission is to deliver a more equal society by
- raising awareness of disability, independent living and personalisation
- championing the voices of disabled people, carers and those accessing health and social care
- delivering high quality support and services that enable people to live independent lives
Our values
Working together we achieve real change in the lives of the people we support - so that we can all participate in our communities and have greater choice, control and freedom. Our values are:
Excellence
Click or hover to find out more.
Excellence
We believe in integrity, accountability and transparency. Our passion drives us to go above and beyond, delivering high-quality, person-centred services which change lives.
Inclusion
Click or hover to find out more.
Inclusion
We celebrate our differences and believe that embracing diversity makes us stronger. We aim to create a world based on respect and understanding where every voice is heard.
Innovation
Click or hover to find out more.
Innovation
We deliver creative solutions, technology, and forward-thinking strategies to continuously improve services, support and the wider environment to enable people to live independent lives.
Community
Click or hover to find out more.
Community
We form part of a connected, supportive environment where we build an accessible and sustainable society through our connections and support of one another.
2024 in numbers
Every year, Independent Lives supports thousands of people through choice and control allowing them to live their lives independently. Last year was no different - take a quick look below at our impact through numbers.
We provided information and advice 7,934 times to 2,685 people.
Our care service provided 44,140 hours of person centred care in people's own homes.
Our carers respite service provided 7,488 hours of respite across 2024.
We ran 504 adverts helping people recruit the best personal assistants to support them.
We delivered expert training to 783 personal assistants and Direct Payment employers.
We received 3,486 applications for employment on behalf of Direct Payment employers.
We visited people to provide care 74,101 times allowing people to live with choice and control.
We processed 403 DBS checks allowing Direct Payment employers to safely employ personal assistants.
We processed 16,800 payrolls allowing Direct Payment employers to live independently.
We set up new bank accounts for 160 people helping them to manage their Direct Payments.
Our engagement programme, Friends of Independent Lives reached more than 120 members.
Our carers respite service consumed more than 5kg of biscuits with their tea and coffee in 2024!
Our research
During 2024, Independent Lives surveyed and interviewed disabled people and carers to understand how the cost-of-living crisis has affected them. What we discovered was a community struggling to manage their most basic needs.
As a result of our research, we have found that disabled people and carers have been forced into making dire choices between heating, eating and care. We also found how few options there were for people, often contributing to them feeling trapped. People also told us how they were surviving but not thriving and how they were suffering from the consequences of the cost-of-living crisis, often with devastating impact on their mental health.
Pressure points:
Experiences of the cost-of-living on disabled people and carers in Sussex.
The report into the effect of the cost-of-living crisis paints a stark picture for disabled people and carers. You can download the full report below which includes direct quotes from those hardest hit by the crisis alongside suggestions for improvements.
Our stories
At the heart of Independent Lives are the people we support. Behind every service we provide is a personal story of resilience, independence, and empowerment. In this section, you’ll hear directly from those who have benefited from our work, whether through Direct Payments, personalised care, or community initiatives. Their experiences highlight the real impact of our support and the difference it makes in everyday lives.
Lottie's story
Maxine’s daughter, Lottie, has complex needs, and finding the right support was a challenge. Through Independent Lives, Maxine was able to access advice and Direct Payment support, ensuring Lottie receives high-quality, person-centred care that enhances her independence.
Jay's story
Jay wanted greater independence in managing his care and, with support from Independent Lives, was able to take control through Direct Payments. Now, he employs his own personal assistants, allowing him to live life on his terms with the support that suits him best.
Debbie's story
As a carer for her son, Debbie faced challenges in accessing the right support. With guidance from Independent Lives, she navigated the Direct Payment process, giving her family the flexibility and stability they needed to manage care in a way that worked for them.
Our strategy
As we conclude our 2021-2025 strategy, we take pride in the progress Independent Lives has made in supporting disabled people, those with long-term health conditions, and carers. Over the past four years, we have grown our services, expanded our reach, and continued to champion independent living in the face of ongoing challenges.
Committed to living wages
During the last strategic period, Independent Lives became a Foundation Living Wage employer, ensuring that all staff receive fair pay that reflects the true cost of living.
Developed and launched PA Pages
Independent Lives launched PA Pages, an innovative online platform connecting Direct Payment employers with personal assistants, streamlining recruitment and access to training.
Became a Disability Confident Leader
Independent Lives achieved Disability Confident Leader status, reinforcing our commitment to inclusive employment and creating opportunities for disabled people in the workplace.
Expanded our reach into East Sussex
Expanding our reach, Independent Lives began delivering Direct Payment services in East Sussex, providing vital support to more people managing their own care.
Achieved 'Good' rating with CQC
Independent Lives achieved a ‘Good’ rating across all areas in its CQC-registered services, reflecting our commitment to high-quality, person-centred care.
Launched Friends of Independent Lives
Independent Lives launched Friends of Independent Lives, creating a membership community to amplify the voices of disabled people and carers while strengthening engagement and support.
Looking ahead
Independent Lives is committed to supporting more people and ensuring that everyone has access to the care and support they need to live independently. As demand continues to grow, we will work to expand our services, improve accessibility, and develop new ways to meet the needs of those who rely on us.
We are currently developing a new strategy that will shape the future of Independent Lives, ensuring that we remain responsive, resilient, and impactful. This strategy will focus on reaching more people, strengthening our services, and continuing to champion independent living. By listening to those with lived experience, we will shape our work around what truly matters, supporting choice, control, and inclusion in every aspect of life.
The challenges facing health and social care remain significant, with rising costs, funding pressures, and increasing demand placing strain on services. We recognise the need to be adaptable, proactive, and innovative in how we respond. By strengthening our partnerships, improving efficiency, and investing in digital solutions, we will continue to provide high-quality support while making the best use of our resources.
Our focus will remain on being a user-led organisation that champions independence, choice, and inclusion. We will listen to those we support, advocate for change, and work tirelessly to remove barriers that prevent people from living the lives they choose. The future will bring challenges, but it also brings opportunities to grow, to improve, and to make an even greater impact. Together, we will ensure that Independent Lives continues to be a vital source of support for years to come.